As stated earlier, this was involved on an episode of house, considering there are only a handful of cases present, I don't think its likely many EMS personnel have seen such a case, but if anyone has, it would be great to hear about it ..
As others have stated now that we have the solution to the riddle if people want to know more about the disease they can look it up ... and people who researched it to find out the answer probably did read information about the disease.